Research talk:Investigating Neurodivergent Wikimedian Experiences

Grant proposal page discussion link

See also: Grants talk:Programs/Wikimedia Research Fund/Investigating Neurodivergent Wikimedian Experiences Hexatekin (talk) 02:47, 1 May 2024 (UTC)

The Editors - Stephen Harrison

Hello folks, firstly I'm so pleased to see this research happening. I think it's really important. Secondly, I'm flagging the novel The Editors by Stephen Harrison, which is based aound the movement. Some of the characters I think are coded with neurodiverse tropes. It might be interesting as a way of examining how a novelist (who has worked a lot with the community I believe) presents us. All the best for the project Lajmmoore (talk) 16:04, 22 May 2024 (UTC)

@Lajmmoore: Thanks! Stephen has interviewed me. I am reading that book now and to some extent I am part of the characters in it. I have a list of his wiki works at en:WP:Stephen Harrison. If you have other suggestions or want to ask anything else about the research then feel free. Bluerasberry (talk) 16:45, 22 May 2024 (UTC)

Sweet! I'm really pleased you know about it already. Lajmmoore (talk) 07:01, 23 May 2024 (UTC)

Thanks, @Lajmmoore:. We will have to consider if there are discussions about neurodiversity-related topics in public responses and reactions to the text and criteria for inclusion in our data set. It may be out of scope for us to include fiction as data items, but we are still in the process of honing the methodology. Best wishes, Hexatekin (talk) 04:41, 24 May 2024 (UTC)

I want to completely opt out from this, how do I do so?

I'm neurodivergent, but I refuse to have anything to do with this. From what I understand, this is a study on neurodivergent editors as a whole, and I don't want to be contacted, or any of my edits used for this. LilianaUwU ^{(talk / contribs)} 04:21, 20 June 2024 (UTC)

Hi User:LilianaUwU. We are not doing research involving contacting editors or conducting 'human subjects research' involving direct communication with human subjects. We are also not labeling users as neurodivergent ourselves. However, we recognize when people self-identify with the label. The methodology is a big part of the documentation and development of this research, starting from the proposal stages. Our methodology involves analyzing public conversations where people are discussing neurodivergence among Wikimedia editors. We are currently developing a data collection and privacy plan that we will post with study materials and will discuss how people can opt out. However, please let me know if you have any specific questions I can help answer about our methods, as we are doing our best to approach this research question slowly and with a lot of care. That's why we have started by doing a public content analysis, and why we are not doing a survey or human subjects research. Hexatekin (talk) 18:46, 20 June 2024 (UTC)

Deleted portion from Policy, Ethics, and Human Subjects Research

As a Co-PI, I have just deleted the following text from this Meta page: "Researchers also commit to developing a process for including texts originating from potentially sensitive contexts in our dataset, beginning with identifying indicators of sensitive contexts, such as discussions on talk pages done in time-critical contexts, or indicators of excited states or states of distress. Such a set of indicators of sensitive contexts may be useful for other Wikimedia researchers." I deleted this text because this policy was deemed impractical. Investigators are not equipped to label what constitutes sensitive contexts. This procedure may be of interest to future researchers considering the ethics of methods. Hexatekin (talk) 15:18, 25 July 2024 (UTC)

In memoriam of Steve Silberman

Our research advisor Steve Silberman passed away Wednesday, 29 August, 2024. He was a fantastic collaborator, and will be sincerely missed. Hexatekin (talk) 04:28, 9 September 2024 (UTC)

Tink, Amanda (September 2, 2024). "Steve Silberman, who changed autistic lives with Neurotribes, has died. He captured ‘a civil rights movement being born’" (article). The Conversation.