Grants:Programs/Wikimedia Alliances Fund/Improving Mental Health Care Information on Wikipedia
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A. Organization type
- Mission-aligned organization
B. Organization name
E. Do you have an account on a Wikimedia project?
E1. Please provide the main Wikimedia Username (required) and Usernames of people related to this proposal.
G. Have you received grants from the Wikimedia Foundation before?
- Did not apply previously
H. Have you received grants from any non-wiki organization before?
- H1. Which organization(s) did you receive grants from?
- Value Labs, Tech Mahindra, and generous donars
- H2. Please state the size of these grants from the following options.
- Between 5,000-50,000 USD
- H3. What type of organization (s) did you receive grants from?
- Government, International NGO, Crowd funded initiatives, Other
- H4. What percentage of your program budget do other funders contribute to?
- Less than 30%
1. Do you have a fiscal sponsor?
1a. Fiscal organization name.
2. Are you legally registered?
3. What type of organization are you?
- Non profit organisation
4. What is your organization or group's mission and how does it align with the Wikimedia movement?
- We at Margika, strongly believe that the mission of Margika and Wikimedia movement closely align as both the organizations at its root believe in empowering and engaging people around the world by creating awareness and building capabilities of people through access to knowledge. Together by creating awareness on mental health care, Margika and Wikimedia communities can transform the lives of people around the world through access to authentic and reliable healthcare information!
5. If you would like, please share any websites or social media accounts that your group or organization has. (optional)
6. Please state the title of your proposal.
- Improving Mental Health Care Information on Wikipedia
9. Where will this proposal be implemented?
- United States of America
10. Indicate if it is a local, international, or regional proposal and if it involves several countries?
10a. If you have answered international, please write the country names and any other information that is useful for understanding your proposal.
- Mental health is an international issue and any improved Wiki article can be viewed in almost all countries.
10b. Are there any specific sub-regions or areas where your proposal will be implemented?
11. What is the challenge or problem you are addressing and why is this important?
- Recently, the British Medical Journal published a systematic review on the association between suicide reporting in the media with a shocking conclusion that reporting of deaths of celebrities by suicide increases the number of suicides by 8-18% in the next 1-2 months, and information on the method of suicide was associated with an increase of 18-44% in the risk of suicide by the same method. Press release by Bristol University adds that people can now read a news story about what was the method of suicide, and then learn how to use that method from sites such as Wikipedia.
The above mentioned is only one such example, it is highly troublesome that the media plays such a strong role in aggravating the mental health of a person. This is largely because information reported on mental health care on social media is inadequate and often misleading. Similarly, there is also high usage of insensitive terminologies, making readers feel negatively about themselves and other groups. Most importantly, due to the stigma associated with mental healthcare, easily accessible and scientific content related to mental health care isn’t available in regional languages in the media.
The substantive issues that can be identified are as follows- 1) Published information and reporting on mental health can be misleading, 2) Pejorative or otherwise problematic terminology used around mental health topics marginalizes and harms some underrepresented communities. 3) Accessibility to mental healthcare info in the media is often limited to English, causing a lack of access for other language communities.
To address the above problem, Margika, a network for training and capacity building will collaborate with mental health care organizations for data acquisition. It is a known fact that Wikipedia is the most consulted source of knowledge, and hence the knowledge of Wikipedia needs to be constantly updated. On the other hand, many reputed mental health organizations are good sources of knowledge but are a recipient to a small number of audiences. Along with Wikimedia communities, we will adopt and translate the content in regional languages, enabling individuals to publish authentic, verified and sensitized information regarding mental health care on Wikipedia.
One of the biggest challenges identified by us in this process is the copyrighted healthcare content of various mental healthcare organizations, and thus it becomes difficult to use that information on any of the Wikimedia platforms. Margika with the help of Wikimedia communities will educate various mental healthcare organizations to share their content under suitable CC-BY-SA, which can be used by the wider Wikimedia community.
12. What is the main objective of your proposal? Please state why you think partnering with Wikimedia Movement helps to achieve this objective?
- The main objective of our proposal is that information related to mental healthcare should be easily shared and accessed everywhere around the world. By partnering with the most consulted open-source platforms like Wikimedia, it will help us achieve our objective of creating and distributing accurate and verified content on mental healthcare to the masses.
13. Describe your main strategies to achieve this objective?
- For content acquisition-
Dedicated workshops will be conducted for mental healthcare organizations to educate them about Wikipedia along with CC-BY-SA licensing. The workshop will encourage partner organizations to share their content on Wikipedia. We have already collaborated with a few mental health organizations that have already shared their content with us. Our experienced and certified trainers from organizations like the University of South Florida’s Center for Autism and Related Disability, Vanderbilt University’s Kennedy Center, University of North Carolina, Chapel Hill have also brought their content with them to Margika. We will identify suitable content as per Wikimedia guidelines, which will be further integrated into various Wiki platforms.
For Content translation- In order to deliver quality health content in regional languages, we would begin by using the existing topic prioritization process established by WikiProject Med's Translation Task Force to select the English Wikipedia medical content which we translate to regional languages. That process seeks to deliver the health information which is most relevant for audiences in emerging communities, to the most people, with the highest quality information which already has gone through Wikipedia's English language quality control process. The translation process includes staging text for stakeholder evaluation, translating it in a way that similarly invites comment, and complying with existing Wikimedia community processes for stakeholder participation. Once content is publicly available and after three months, a typical amount of time to collect Wikipedia user response, we will measure and report the quality of the content and its associated impacts using native Wikipedia measurement tools which report the Wikimedia suite of communication metrics, including pageviews, editor engagement, and any user comments.
For Content Publishing- This proposal will publish medical information in the regional language Wikipedias. We will adopt existing Wikimedia community processes wherever there is a stakeholder community offering guidance. The workflow will include applying existing community processes to each of the following steps: selecting existing English Wikipedia medical articles for translation, staging that content for localization, executing the translation, publishing the translated content, recruiting stakeholder feedback, measuring the publishing impact, and publishing a program summary to communicate outcomes and credit the contributions of all participants. Each step will invite open public participation and include collaboration from a relevant, representative Wikimedia or community organization.
14. Are you running any in-person events or activities?
15. Please state if your proposal aims to work to bridge any of the identified content knowledge gaps?
- Content Gender gap, Age (regency) , Geography, Language, Socioeconomic Status, Sexual Orientation, Important Topics (topics considered to be of impact or important in the specific context), Cultural background, ethnicity, religion, racial
16. Please state if your proposal includes any of these areas or thematic focus.
- Education, Advocacy, Human Rights, Public Policy, Open Technology, Diversity
17. Will your work focus on involving participants from any underrepresented communities? Select all categories that apply.
- Gender Identity, Sexual Orientation, Ethnic/racial/religious or cultural background, Disabilities, Linguistic / Language, Socioeconomic status, Digital Access
18. Please tell us more about your target participants.
- Our proposal is an international call to individuals, communities, institutions, and grassroots organizations working in the area of mental health care to freely share their content in the public domain. To make our content as inclusive as possible we aim to create a diverse cohort of contributors and stakeholders. We have already collaborated with a few organizations like the University of Florida, the Centre for Autism and related Disability, Florida Family leader’s Network, etc.
The following is the strategy Margika will implement to retain participants-
There is a content gap related to mental health care information on Wikimedia platforms. Almost all mental health care organizations' content is copyrighted. We will educate such organizations to share content under suitable CC-BY-SA licenses. It will enable Wikimedia communities to use authentic and verified information on Wikimedia platforms as the content won't be copyrighted anymore. This will increase the outreach of mental healthcare organizations as well. We will pair regional healthcare organizations with local Wikimedia volunteers for sustainability.
19. Do you have plans to work with other Wikimedia communities, groups or affiliates in your country, or in other countries, to implement this proposal?
19a. If yes, please tell us about these connections online and offline and how you have let Wikimedia communities know about this proposal.
- Key community leaders working in WikiProject Medicine and Translation Task Force are informed via e-mail. Local affiliates have assured help to conduct workshops. We have already done preliminary engagement through online engagements and Wikipedia workshops in the past. Margika will be working with AfroCROWD to conduct translation workshops.
19b. If no, please tell us the reasons why it has not been possible to make these connections.
20. Will you be working with other external non-Wikimedian partners to implement this proposal?
20a. If yes, please describe these partnerships.
- Center for Autism and Related Disability, University of Florida
Harvard Graduate School of Education Harvard School of Public Health Florida Family Leader’s Network Art for All, Florida Florida Inclusion Network Univeristy of Florida's Deaf and Dumb Society Council for exceptional children, Florida Chapter Public Health Department, University of South Florida, Special Education Department, University of South Florida. Florida Family Cafe
20a. If yes, indicate sharing of resources from these partners (in kind support, grants, donations, payments).
- Venue, Expertise and Suitable Wikimedia friendly content donation
21. Please tell us how your organization is structured.
- Margika is a legally registered non-profit organization. There are currently 5 people that constitute the team of Margika who will be directly involved with this project.
Dr Neena Rao is the CEO of Margika. She has varied and diverse national and international experience in academia, research, training, and implementation in the development field.
Dr Sushil Puskur is a consulting advisor at Margika.He is a M.D., M.S., FAPA, certified by American Board of Psychiatry and Neurology, Inc. in Child, Adolescent and Adult Psychiatry, currently practicing in Ocala, Florida.
Suyodh Rao works as a strategist at Margika, he has an MS in Information Technology, Regis University, Denver, Colorado, USA and a Masters in Economics from the Gokhale Institute of Politics and Economics, Pune.
Pam Kissoondyal works in the capacity of a consultant at Margika. She has received training in the INSITE, SKI-HI and VIISA models and is a Florida Partners and Policy Making Graduate.
Mahesh Kumar Rajguru heads the technical team at Margika
Apart from the above 5 team members, Margika has a dedicated and highly qualified advisory body. The details of the advisory body can be found on the link below. http://margika.org/#/about-advisory-body
22. Do you have the team that is needed to implement this proposal?
- Along with our experts, we have experienced Wikimedian and healthcare expert James Heilman as advisor for our project and we will be working with the AfroCROWD and WikiProject Medicine members for the workshops.
23. Please state if your organization or group has a Strategic Plan that can help us further understand your proposal. You can also upload it here.
Learning, Sharing, and EvaluationEdit
24. What do you hope to learn from this proposal?
- Margika has been working dedicatedly in the field of mental health care, addressing the need of creating awareness, fighting stigma, and providing advanced knowledge, and best practices from the world over.
Margika has a very clear vision for new learnings and sustainability. Before we start our project we plan to conduct a few pilot workshops to test our assumptions. This being said, we hope to learn the following from this proposal-
1) Content Acquisition-Helping mental healthcare organizations to share content under suitable CC-BY-SA license.
2)Translation of the acquired content- Translation of mental healthcare content in regional languages and Increasing the awareness of mental healthcare at the grassroots level.
3) Publishing of the acquired content- the acquired content will be published on the Wikimedia platforms
4) Documenting and Publishing our learnings in relevant journals
25. Enter a description of the metric and a number in the target field. If the metric does not apply to you, enter N/A for not applicable.
|Number of participants|
|Number of editors|
|Number of organizers|
25a. If for some reason your proposal will not measure these core metrics please provide an explanation. (optional)
- 10 Participating organizations and 5 organizations who will agree to donate the content.
26. What other information will you be collecting to learn about the impact of your work? (optional)
- Pageviews, number of participant organizations, number of donated infographics
27. What tools would you use to measure each metric selected?
- 10 Agreements
28. How do you hope to share these results so that others can learn from them?
- Create a video of our experience, Make a short presentation of the experience, Create a training workshop to show others what we learned, Share results on social media, Share results with our communities, Participate in one on one peer sharing session with other grantees, Share it on Meta-Wiki
29. What is the amount you are requesting from WMF? Please provide this amount in your local currency.
- 100000 USD
30. What is this amount in US Currency (to the best of your knowledge)?
- 100000 USD
31. & 32. Please provide a budget for the amount of funding requested.
33. What do you do to make sure there is a good management of funds?
- Margika is working in the field of mental health for the last five years. Our accounts are subject to an annual audit. All project activities are financially administered and recorded according to government rules and regulations.
34. How will you contribute towards creating a supportive environment for participants using the UCOC and Friendly Space Policy?
- We will follow UCOC and Friendly Space Policy. We will be hosting workshops with the help of experts who are also trained in creating a friendly space for mental healthcare workers.
35. Please use this optional space to upload any documents that you feel are important for further understanding your proposal.
- Other public document(s):
By submitting your proposal/funding request you agree that you are in agreement with the Application Privacy Statement, WMF Friendly Space Policy and the Universal Code of Conduct.
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